Statistics about Ehlers-Danlos syndrome


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About statistics: This page presents a variety of statistics about Ehlers-Danlos syndrome. The term 'prevalence' of Ehlers-Danlos syndrome usually refers to the estimated population of people who are managing Ehlers-Danlos syndrome at any given time. The term 'incidence' of Ehlers-Danlos syndrome refers to the annual diagnosis rate, or the number of new cases of Ehlers-Danlos syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

Prevalence and incidence statistics for Ehlers-Danlos syndrome: (see also prevalence and incidence page for Ehlers-Danlos syndrome)
  Prevalance of Ehlers-Danlos syndrome: 1 in 5,000 to 10,000 (Ehler's Danlos National Foundation)
  Prevalance Rate: approx 1 in 5,000 or 0.02% or 54,400 people in USA [about data]

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