Basic Summary for Hemophilia

Main name of condition: Hemophilia
Other names or spellings: Haemophilia

What is Hemophilia?
  Brief description of Hemophilia: Blood disease usually genetic causing failure to clot.
  Parent types of Hemophilia: Bleeding disorders, Blood conditions, Genetic Disease, Recessive Genetic Diseases, X-linked Genetic Diseases, X-linked Recessive Genetic Diseases, Carrier conditions
  Organs Affected by Hemophilia: blood
  Types of Hemophilia: Hemophilia factor VIII, Hemophilia factor IX, Hemophilia A, Hemophilia B, Christmas Disease, Autoimmune Hemophilia

How many people get Hemophilia?
  Prevalance of Hemophilia: 20,000 people in the United States (NHLBI)
  Prevalance Rate of Hemophilia: approx 1 in 13,600 or 0.01% or 20,000 people in USA [about data]
  Incidence (annual) of Hemophilia: about 400 babies annually (NHLBI)
  Incidence Rate of Hemophilia: approx 1 in 680,000 or 0.00% or 400 people in USA [about data]
  Prevalance of Hemophilia: There are about 20,000 hemophilia patients in the United States.¹
  Incidence of Hemophilia: Each year, about 400 babies are born with this disorder.¹

Who gets Hemophilia?
Patient Profile for Hemophilia: Usually diagnosed early in childhood and often in infancy.
Gender Profile for Hemophilia: Males only (because it is genetic x-linked recessive)

How serious is Hemophilia?
  Prognosis of Hemophilia: Good. Near normal lifestyle with treatment, but with need to avoid injury.
  Prognosis of Hemophilia: Advances in treatment over the last three decades have permitted a near-normal lifestyle and life-span for many individuals with hemophilia.²
  Deaths for Hemophilia: 1,681 deaths for coagulation defects (NHLBI 1999)
  Complications of Hemophilia: see complications of Hemophilia

What causes Hemophilia?
Class of Condition for Hemophilia: genetic x-linked recessive

What are the symptoms of Hemophilia?
Symptoms of Hemophilia: see symptoms of Hemophilia

Can anyone else get Hemophilia?
Inheritance: see inheritance of Hemophilia
Inheritance of genetic conditions: see details in inheritance of genetic diseases.

How is it treated?
Treatments for Hemophilia: see treatments for Hemophilia
Research for Hemophilia: see research for Hemophilia

Society issues for Hemophilia
Hospitalizations for Hemophilia: 18,000 for coagulation defects (NHLBI 1999)
Hospitalization statistics for Hemophilia: The following are statistics from various sources about hospitalizations and Hemophilia:

0.025% (3,141) of hospital consultant episodes were for hereditary factor VIII deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
97% of hospital consultant episodes for hereditary factor VIII deficiency required hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
97% of hospital consultant episodes for hereditary factor VIII deficiency were for men in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
3% of hospital consultant episodes for hereditary factor VIII deficiency were for women in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
24% of hospital consultant episodes for hereditary factor VIII deficiency required emergency hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
2.7 days was the mean length of stay in hospitals for hereditary factor VIII deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
0 days was the median length of stay in hospitals for hereditary factor VIII deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
31 was the mean age of patients hospitalised for hereditary factor VIII deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
53% of hospital consultant episodes for hereditary factor VIII deficiency occurred in 15-59 year olds in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
4% of hospital consultant episodes for hereditary factor VIII deficiency occurred in people over 75 in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
68% of hospital consultant episodes for hereditary factor VIII deficiency were single day episodes in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
0.0044% (2,327) of hospital bed days were for hereditary factor VIII deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
0.006% (713) of hospital consultant episodes were for hereditary factor IX deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
98% of hospital consultant episodes for hereditary factor IX deficiency required hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
92% of hospital consultant episodes for hereditary factor IX deficiency were for men in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
8% of hospital consultant episodes for hereditary factor IX deficiency were for women in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
14% of hospital consultant episodes for hereditary factor IX deficiency required emergency hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
3.2 days was the mean length of stay in hospitals for hereditary factor IX deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
0 days was the median length of stay in hospitals for hereditary factor IX deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
21 was the mean age of patients hospitalised for hereditary factor IX deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
34% of hospital consultant episodes for hereditary factor IX deficiency occurred in 15-59 year olds in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
1% of hospital consultant episodes for hereditary factor IX deficiency occurred in people over 75 in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
82% of hospital consultant episodes for hereditary factor IX deficiency were single day episodes in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
0.0007% (355) of hospital bed days were for hereditary factor IX deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)

Physician office visits for Hemophilia: 19,000 for coagulation defects (NHLBI 1999)

Footnotes:
1. excerpt from Hemophilia: NHLBI
2. excerpt from Hemophilia Update 1997: NHLBI

Last revision: May 28, 2003

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