Statistics about Hemophilia

About statistics: This page presents a variety of statistics about Hemophilia. The term 'prevalence' of Hemophilia usually refers to the estimated population of people who are managing Hemophilia at any given time. The term 'incidence' of Hemophilia refers to the annual diagnosis rate, or the number of new cases of Hemophilia diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

Prevalence and incidence statistics for Hemophilia: (see also prevalence and incidence page for Hemophilia)
  Prevalance of Hemophilia: 20,000 people in the United States (NHLBI)
  Prevalance Rate: approx 1 in 13,600 or 0.01% or 20,000 people in USA [about data]
  Incidence (annual) of Hemophilia: about 400 babies annually (NHLBI)
  Incidence Rate: approx 1 in 680,000 or 0.00% or 400 people in USA [about data]
  Prevalance of Hemophilia: There are about 20,000 hemophilia patients in the United States.¹
  Incidence of Hemophilia: Each year, about 400 babies are born with this disorder.¹

Death and mortality statistics for Hemophilia:
Deaths from Hemophilia: 1,681 deaths for coagulation defects (NHLBI 1999)

Society statistics for Hemophilia
Hospitalizations for Hemophilia: 18,000 for coagulation defects (NHLBI 1999)
Hospitalization statistics for Hemophilia: The following are statistics from various sources about hospitalizations and Hemophilia:

0.025% (3,141) of hospital consultant episodes were for hereditary factor VIII deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
97% of hospital consultant episodes for hereditary factor VIII deficiency required hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
97% of hospital consultant episodes for hereditary factor VIII deficiency were for men in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
3% of hospital consultant episodes for hereditary factor VIII deficiency were for women in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
24% of hospital consultant episodes for hereditary factor VIII deficiency required emergency hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
2.7 days was the mean length of stay in hospitals for hereditary factor VIII deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
0 days was the median length of stay in hospitals for hereditary factor VIII deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
31 was the mean age of patients hospitalised for hereditary factor VIII deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
53% of hospital consultant episodes for hereditary factor VIII deficiency occurred in 15-59 year olds in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
4% of hospital consultant episodes for hereditary factor VIII deficiency occurred in people over 75 in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
68% of hospital consultant episodes for hereditary factor VIII deficiency were single day episodes in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
0.0044% (2,327) of hospital bed days were for hereditary factor VIII deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
0.006% (713) of hospital consultant episodes were for hereditary factor IX deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
98% of hospital consultant episodes for hereditary factor IX deficiency required hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
92% of hospital consultant episodes for hereditary factor IX deficiency were for men in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
8% of hospital consultant episodes for hereditary factor IX deficiency were for women in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
14% of hospital consultant episodes for hereditary factor IX deficiency required emergency hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
3.2 days was the mean length of stay in hospitals for hereditary factor IX deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
0 days was the median length of stay in hospitals for hereditary factor IX deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
21 was the mean age of patients hospitalised for hereditary factor IX deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
34% of hospital consultant episodes for hereditary factor IX deficiency occurred in 15-59 year olds in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
1% of hospital consultant episodes for hereditary factor IX deficiency occurred in people over 75 in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
82% of hospital consultant episodes for hereditary factor IX deficiency were single day episodes in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
0.0007% (355) of hospital bed days were for hereditary factor IX deficiency in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)

Physician office visits for Hemophilia: 19,000 for coagulation defects (NHLBI 1999) '

Footnotes:
1. excerpt from Hemophilia: NHLBI

Last revision: May 28, 2003

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