Prevalence and Incidence of Scleroderma


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About prevalence and incidence statistics: The term 'prevalence' of Scleroderma usually refers to the estimated population of people who are managing Scleroderma at any given time. The term 'incidence' of Scleroderma refers to the annual diagnosis rate, or the number of new cases of Scleroderma diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

Prevalance of Scleroderma: estimated 300,000 Americans (NWHIC)
Prevalance Rate: approx 1 in 906 or 0.11% or 300,000 people in USA [about data]
Prevalance of Scleroderma: Estimates for the number of people in the United States with systemic sclerosis range from 40,000 to 165,000. By contrast, a survey that included all scleroderma-related disorders, including Raynaud's phenomenon, suggested a number between 250,000 and 992,500.1 ... The estimated number of people with any type of scleroderma varies from study to study but may range from 1 to 4 affected individuals for every 10,000 Americans (or as many as 1 out of 2500 individuals).2

Prevelance statistics about Scleroderma: The following statistics relate to the prevalence of Scleroderma:

  • 1-in-2500 to 1-in-10,000 (NIAID, varies with study)
  • 8,922 people in the USA 1996 3
  • Scleroderma (systemic sclerosis) is 3 times as common in women than men in the US (Scleroderma Research Foundation, 2004)
  • Scleroderma (systemic sclerosis) is 15 times as common in women at childbearing age than men in the US (Scleroderma Research Foundation, 2004)
  • Scleroderma (systemic sclerosis) is more common in black than white in the US (Scleroderma Research Foundation, 2004)
  • 300,000 cases of Scleroderma (systemic sclerosis) in the US (Scleroderma Research Foundation, 2004)


Footnotes:
1. excerpt from Handout on Health Scleroderma: NIAMS
2. excerpt from Understanding Autoimmune Disease: NIAID
3. Rose and Mackay, 1998, The Autoimmune Diseases, Third Edition

Last revision: June 13, 2003

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