Treatments for Von Hippel-Lindau Disease


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Treatment list for Von Hippel-Lindau Disease: The list of treatments mentioned in various sources for Von Hippel-Lindau Disease includes the following list. Always seek professional medical advice about any treatment or change in treatment plans.

Treatments of Von Hippel-Lindau Disease discussion: Treatment for VHL varies according to the location and size of the angiomas. In general, the objective of treatment is to treat the growths when they are small so that they do not cause permanent problems by putting pressure on the brain or spine, blocking the flow of cerebrospinal fluid in the nervous system, or impairing vision. Treatment of most cases of VHL usually involves surgery to remove the tumors before they become harmful. Certain tumors can be treated with focused high-dose irradiation. Individuals with VHL need careful monitoring by a physician and/or medical team familiar with the disorder. 1

Footnotes:
1. excerpt from NINDS von Hippel-Lindau Disease Information Page: NINDS

Last revision: June 24, 2003

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